A New Wave of Hope

Join Us in the Quest to Help Advance Treatment for Dravet Syndrome

A clinical study to potentially help reduce the number of seizures in children and adults with Dravet Syndrome.

Eligibility

Participants aged 2 to 65 with a diagnosis of Dravet Syndrome who experienced initial seizure activity between the ages of 12 and 19 months may qualify.

About the DEEp SEA Study

The DEEp SEA clinical study is assessing the safety of the investigational drug and its potential to reduce the number of seizures in children and adults with Dravet Syndrome.

Locations

Take a moment to browse through our map of current study locations. Find one that’s close to you, making it easier for your loved one to participate.

See If Your Loved One Qualifies for This Study

Fill out the form below to help determine eligibility.

Eligible participants include individuals aged 2 to 65 who have been diagnosed with Dravet Syndrome and experienced the onset of seizures between the ages of 12 and 19 months. Additionally, they have experienced an average of four seizures per month over the past three months.

Who Can Take Part?

Eligible participants include individuals aged 2 to 65 who have been diagnosed with Dravet Syndrome and experienced the onset of seizures between the ages of 12 and 19 months. Additionally, they have experienced an average of four seizures per month over the past three months.

Participants who may qualify to join:

  • Have been diagnosed with Dravet Syndrome.
  • Are between the ages of 2 and 65 years old.
  • Have experienced seizure onset between 12 and 19 months of age.
  • Have had an average of 4 seizures per month during the last 3 months.
  • Are willing and able or have a caregiver who can maintain study diaries throughout the DEEp SEA study.

Additional study requirements and exclusions may apply including certain anti-seizure medications. Only a qualified healthcare professional can determine if your loved one is eligible to participate in the study.

What to Expect During the DEEp SEA Study?

Screening

To take part in this study, your loved one will need to be evaluated by a physician to determine eligibility. It may take up to 5 weeks to evaluate a potential participant’s eligibility for the study.

Screening

To take part in this study, your loved one will need to be evaluated by a physician to determine eligibility. It may take up to 5 weeks to evaluate a potential participant’s eligibility for the study.

Study Treatment

Eligible participants will take part in a 15-week study treatment period. Participants will be randomly assigned to receive a liquid formulation of either the investigational drug or placebo. The placebo will look and taste like the investigational drug being tested in the clinical study but has no active ingredients in it.

During the study, participants can expect at least 6 on-site visits for tests and evaluations as well as 3 telephone visits to review progress. Participants or caregivers will need to maintain electronic diaries throughout the study.

Study Treatment

Eligible participants will take part in a 15-week study treatment period. Participants will be randomly assigned to receive a liquid formulation of either the investigational drug or placebo. The placebo will look and taste like the investigational drug being tested in the clinical study but has no active ingredients in it.

During the study, participants can expect at least 6 on-site visits for tests and evaluations as well as 3 telephone visits to review progress. Participants or caregivers will need to maintain electronic diaries throughout the study.

Open-Label Extension

Participants who complete the last visit of the study treatment period can continue in an open-label extension study (OLE). During the OLE, all participants will receive the investigational drug.

Open-Label Extension

Participants who complete the last visit of the study treatment period can continue in an open-label extension study (OLE). During the OLE, all participants will receive the investigational drug.

Follow Up

Participants who choose not to enter the OLE study will continue their participation through the follow-up visit.

Follow Up

Participants who choose not to enter the OLE study will continue their participation through the follow-up visit.

Find a Study Site Near You

Current research site locations are listed below and more may be added at any time.